Progressive Supranuclear Palsy

Been awhile. It has been a life altering few months.
Two trips to Scottsdale, Arizona to the Mayo clinic and this is what my husband has been diagnosed with.
We were told over a year ago that it was Parkinson's. He was progressing way to fast for it to be Parkinson's, so we decided to go out on our own and find someone to help us. Dr. Evidente is the best neurologist and we would recommend him in a heart beat.
PSP is not curable or treatable and progresses rather fast. It is an older persons disease just like Parkinson's, very rare for young people to get it.
The average life span after dx is 5-9 yrs. WOW right.
So what is PSP? It is neurodegenerative brain disease. It affects nerve cells that control walking, balance, mobility, vision, speech and swallowing.
WOW right. I know.
My husband has been very courageous. He is still able to work, with alot of adjustments, walks with a walker and cane. He gets frustrated alot because the meds sometimes don't kick in. Which means no driving, stiffness and super off balance.
If alls we have together are 9 more years, they will be the best, most loving years of our lives. I will love him for the rest of my life.
I ask for prayers, for us and for the other families who are going thru the same thing.

Road trip to New Mexico and Arizona

Leaves at Thithers house.

NICE.

We were really high up

I love the way the poles look. I can't take credit for this picture Thither took it.

I love the mountains. Miss living there.

Snow on the mountains.

Thither and I on Route 66.

Loved the look of this church.

Sunrise or Sunset? Don't have a clue. It all blends together.

So tickled this turned out, this was taken around sunset. Zoom in and see the crators.

Hope you enjoy the pictures.

Ok Thither tag me form over at Homedaze. So here are my answers.


1. How did you meet your husband? We met at Sonic in 1996
2. How did you choose the names for your children? I don't have any children.
3. What is a life lesson you wish your children would learn without experience? All life lessons should be experienced.
4. What is the one book you could read over and over again and why? Angelwalk- makes you sit up and think. Then question how you are living your life and whether you are living it the way God wants you to.
5. What/when/where was your favorite family vacation? Florida, 2004, Jim worked alot of overtime so we could take the kids to Disneyland. We had a blast and did everything.
6. When you were 17, what did you see yourself doing? Is it what you are doing now?At 17 I wasn't worried about what I was going to do with the rest of my life. I traveled.
7. Books or movies? Why? I have to choose? No it's to hard I don't want to choose.
8. How has God blessed you recently? Showed me that he has a plan, I don't know what it is but he is in control.

Love you Thither

I love my little Thither.

She is so great. I want to be her when I grow up.
Thither is a wonderful wife, mother, friend, teacher, Thither(sister).
I wouldn't know what to do without her. She has helped me thru alot of things. She has been there for me thru thick and thin.

I love you so much Thither.

Vacation Pictures- Wisconsin Dells.

42 yesterday

I turned 42 yesterday. I love my age and I love who I am.

But this year my age really affected me. Why?
I am feeling so old. My heart hurts, my mind is tired, my body is falling apart.

I find myself so uncontent, (is that a word?). I am sitting here wondering what I have done with my life. I hate that because I wouldn't change anything. Well except treat my body better and the ability to have babies. But if I did that aren't I second guessing God?

Is this my mid life crisis? If so it sucks.

Oh well life goes on and we just keep getting older.

Now is the time to take charge and make the most of your life. Treat yourself and others better. Love the life you have and the choices you have made.

God bless you all.

Saying Goodbye

We said Goodbye to a very special dog today.

Tasha was such a dollbaby. She was 14 and very specal.

We will miss her fun and very loving spirit.